This project focuses on developing a patient-oriented framework for creating and evaluating a culturally relevant educational tool called “BoriZafi“, meaning welcoming pain as a combination of two Nigerian languages. The work aims to educate adolescents with sickle cell disease on non-pharmacological interventions for managing sickle cell crises.
Cross-sectoral co-leaders organizations:
- Non-Governmental Organisations (NGOs)
- Patient Support Groups, Clinicians
- People with Lived Experiences (PWLE)
UBC graduate student co-leader:
- Bukola Ibitoye, PhD student (Nursing)